העמותה הישראלית להתפתחות הילד ושיקומו




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דף הבית >> ארכיון כנסים >> כנס העמותה להתפתחות הילד2012 >> תקצירים ומצגות מכנס העמותה 2012 >> מושב 12 הורות ומשפחה לאור הנכות >> איכות חיים במשפחות עם ילדים בעלי נכויות התפתחותיות
Family Quality of Life in families with children with developmental disabilities: An examination of families from Northern Israel
 
Investigators:
Yael Karni Visel MSW¥, Dana Roth PhD§, Mitchell Schertz MD*
 
¥ Child Development & Pediatric Neurology Service, Meuhedet – Northern Region, Haifa, Israel, yaelvisel@walla.co.il 
§ Beit Issie Shapiro, Raanana, Israel, danar@beitissie.org.il
* Child Development & Pediatric Neurology Service, Meuhedet – Northern Region, Haifa, Israel, mitch_s@meuhedet.co.il
 
 
Background:
Family-focused approach to intervention acknowledging unique needs of the family has led to development of measures examining family quality of life (FQOL). Data in Israel exists only for Central Israel. Given social/cultural/economic characteristics of families in Northern Israel, FQOL data from this area seems indicated. 
 
Aim:
To examine FQOL in Northern Israeli families having a child with a disability.
 
Methods:
Parents of children with disability being followed in MEUHEDET-NORTH Neurodevelopmental Service completed the FQOL-2006-Hebrew-version via telephone/interview/independently. This Likert scale contains nine domains of family life: (health, financial well-being, family relationships, support from others, support from disability related services, values, careers, leisure/recreation, and community integration) and six dimensions: importance, opportunities, initiative, attainment, stability, satisfaction.
 
 
 
Results: 
Eighteen Mothers of Twenty-one children (14 boys, mean±standard deviation(SD) age years 4.21±2.38) completed the scale. Diagnoses of children: Mental Retardation-3, Autistic Spectrum Disorder-7, Cerebral Palsy-5, Genetic Syndrome-6. Degree of necessary assistance required by child was 3.67±1.28 for physical and 3.14±1.39 for communication. FQOL results are seen in Table I.

Table 1

Significant differences noted for: Importance score vs, other dimensions (P<.0001), Family relationships – highest (P<.01) and financial- lowest (P<.05) vs. other domains. 
 
Conclusions:
Families having a child with disability found domains examined to be of importance with the exception of careers and, unexpectedly, community. Highest FQOL were family relationships and values. Lowest was financial.  Health did not have a low FQOL rank. Understanding FQOL in this population will allow better planning/provision of services.
 
 
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