Yael Karni -Visel, Mitchell Schertz, Dana Roth, Jaccob Genizi
Examination of socio demographic parameters in families from Northern Israel in regards to its effect on Family Quality Of Life in those having a child with a severe disability
Family-focused approach to intervention acknowledging unique needs of the family has led to development of measures examining family quality of life (FQOL). Studies in Israel have been conducted only from Central Israel. Given social/cultural characteristics of families in Northern Israel, examining FQOL from this area seems valuable
70 Parents of 70 children, 41 boys (58%), 29 girls (42%) , age (mean±SD) 5.1±3.64 treated in a Neurodevelopmental Service completed the FQOL-2006-Hebrew/Arabic-version via telephone/interview/independently.
This measure contains nine domains of family life (health, financial well-being, family relationships, support from others, support from disability related services, values, careers, leisure/recreation, and community integration) and six dimensions: importance, opportunities, initiative, attainment, stability, satisfaction
Diagnoses of children: Intellectual disabilities, Autistic Spectrum Disorder, Cerebral Palsy and Genetic Syndrome. Degree of support required by the child was (1=independent -5=totally dependent) (mean±SD) 3.73±1.23 for physical and 3.40±1.38 for communication.
Families living in an urban city rated higher in overall perception of QOL, support from services, opportunities and attainment compared to families living in rural areas. Jews reported having a higher overall quality of life compared to Druze (F=8.46, p. <0.001) and Muslims (F= 3.21, p<0.05). Family Religiosity was associated with lower rate of overall QOL, health, family relationship, career and leisure. Only value domain was rated higher in religious families than secular families. No significance differences between FQOL were found between different diagnoses or the child's age. However more level of support required inversely correlated with FQOL
Professionals caring for families with children with disabilities need to consider socio-demographic characteristics as well as particular child characteristics when recommending developmental services