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דף הבית >> כנסים וימי עיון >> Pediatric Chronic Diseases, Disability and Human Development

The Gerry Schwartz and Heather Reisman 3rd International Conference on Pediatric Chronic Diseases, Disability and Human Development

Ramada Hotel, Jerusalem, Israel  December 3-5, 2012
 
A collaboration between Cincinnati Children’s Hospital Medical Center, Division of Pediatrics, Hadassah Hebrew University Medical Center and the National Institute of Child Health and Human Development in Israel
 
Website: www.isas.co.il/chhd
 
 
PROGRAM
 
 
Sunday, December 2, 2012
 
 
17:00 – 19:00 Check in and registration for international participants
 
 
19:00 – 20:30 Cocktail reception for international guests and invited speakers at Ramada Hotel
 
Welcome and greetings (Joav Merrick)
Hadassah, The Women’s Zionist Organization of America 
Musical reception (Siah Sod)
 
 
Monday, December 3, 2012
 
United Nations International Day of Persons with Disabilities
Theme: Removing barriers to create an inclusive and accessible society for all
 
 
08:00 - 08:30 Registration and coffee
 
 
08:30 - 09:00 Welcome and greetings (Eitan Kerem)
 
Osnat Lev Zion Korach, Hadassah – Hebrew University Medical Center, Mt Scopus Campus
Chaia Aminadav, Ministry of Social Affairs and Social Services
Rav Yaakov Litzman, Ministry of Health 
Marc E Rothenberg, Cincinnati Children's Hospital and Medical Center
Shlomo Mor-Yosef, The National Insurance Institute of Israel
 
 
09:00 – 10:30 Opening plenum
 
Pediatric chronic disease: The new epidemic
Chairs: Yona Amitai and Mati Berkovitz
 
Empowerment of the child with chronic disability: My personal experience
Kalman Samuels, Shalva, Israel
 
Comprehensive care of children with special health care needs
Robert A Jacobs, University of Southern California, USA
 
The Israeli healthcare system's response to pediatric chronic disease
Shlomo Mor-Yosef, The National Insurance Institute of Israel
 
The changing face of pediatric chronic care in Israel
Eitan Kerem, Hadassah - Hebrew University Medical Center, Israel
 
 
10:30 – 11:00 Coffee break
 
 
11:00 – 12:30 Parallel sessions
 
 
Session 2.1 - Management of chronic conditions in pediatrics
Chairs: Miki Goldman and Roni Klar
 
Discovery and understanding of a new chronic food allergy disorder: Eosinophilic Esophagitis
Marc E Rothenberg, Cincinnati Children's Hospital and Medical Center, USA
 
Long term management of children with juvenile inflammatory arthritis
Yackov Berkun, Hadassah - Hebrew University Medical Center, Israel
 
Immunization policies for children with chronic diseases
Dan Engelhard, Hadassah - Hebrew University Medical Center, Israel
 
Revealing the genetic cause of neurological disorders
Shimon Edvardson, Hadassah - Hebrew University Medical Center, Israel
 
 
Session 2.2 - Cultural competency in the treatment of children
Chairs: Rita Avramov and Brian Volck
 
Working with children with AIDS 
Estelle Rubinstein, Hadassah - Hebrew University Medical Center, Israel
 
Group therapy of Palestinian mothers of children with head injuries: Multicultural aspects
Wedad Masalha, Hadassah - Hebrew University Medical Center, Israel
 
Medical translators and multiculturalism 
Gila Segev, “Your language project,” Hadassah - Hebrew University Medical Center, Israel
 
Cultural sensitive therapeutic work with children at risk from the foreign community in Tel Aviv
Ofira Ben Shlomo, Mesila Center, Israel
 
Cultural competence: Caring for the child with special needs
Anita Noble, Henrietta Szold/Hadassah-Hebrew University School of Nursing, Israel
 
 
Session 2.3 - Inclusion
Chair: Nehama Baum and David Marcu
 
Dual diagnosis
Nehama Baum, MukiBaum Accessibility Foundation and MukiBaum Treatment Centres, Canada
 
Social inclusion
Hasheem Mannan, Trinity College, Ireland
 
Why it is so difficult for young adults with early age disability to develop relationship affiliations 
Ronit Aloni, Tel Aviv University, Israel
 
 
Session 2.4 - Children at risk
Chairs: John Lutzker and Adi Klein
 
Child advocacy services 
Andrew Pithouse, Cardiff University, Wales
 
Consultation teams and role of the law
Donald Bross, University of Colorado School of Medicine, USA
 
Maltreatment and disability 
Edward Goldson, University of Colorado School of Medicine, USA
 
SafeCare
John Lutzker, Georgia State University, USA
 
Child protection in Israel
Eli Eisenstein, Hadassah - Hebrew University Medical Center, Israel
 
 
Session 2.5 – Sensory modulation disorder 
Sponsored by: School of Occupational Therapy, Hebrew University, Israel 
Chairs: Shula Parush and Aviva Yochman
 
Neurophysiologic correlates of sensory modulation disorder
Shula Parush, School of Occupational Therapy, Hebrew University, Israel
 
Sensory modulation disorder and attention deficit hyperactivity disorder
Aviva Yochman, School of Occupational Therapy, Hebrew University, Israel
 
Pain and sensory modulation disorder
Tami Bar Shalita, School of Occupational Therapy, Hebrew University, Israel
 
Sensory processing in vitamin B1 deficient infants
Esti Takuzener, School of Occupational Therapy, Hebrew University, Israel
 
Sensory modulation disorder and Tourette syndrome 
Hana Weisman, School of Occupational Therapy, Hebrew University and Sheba Medical Center, Israel
 
 
12:30 – 13:30 Lunch break
 
 
13:30 -14:30 Plenum session
 
Chronic disease and disability during adolescence
Chairs: Riva Brik and Yackov Berkun
 
Diagnosing and managing eating disorders: A chronic disease of adolescence
Jessica Kahn, University of Cincinnati College of Medicine, USA 
 
Transition to adult care for the adolescent with a chronic condition: Challenges for the patients, their families and society
Joe Reisman, University of Ottawa, Canada
 
Adolescent depression
Alan Apter, Schneider Children's Medical Center of Israel
 
 
14:30 – 16:00 Parallel sessions
 
 
Session 4.1 - Adolescent medicine
Chairs: Nava Stoffman and Yoram Bujanover
 
Future of adolescent medicine in Israel
Shelly Ben Harush Negari, Cincinnati Children’s Hospital Medical Center, USA and Hadassah - Hebrew University Medical Center, Israel
 
PCOS and other hyperandrogen disorders in adolescence
Jessica Kahn, University of Cincinnati College of Medicine, USA 
 
Diabetes treatment: Novel and future modalities 
Abdulsalam Abu-Libdeh, Hadassah - Hebrew University Medical Center, Israel
 
Use and abuse of the internet by adolescents
Donald Greydanus, Western Michigan University School of Medicine, USA
 
 
Session 4.2 - Community-based care
Sponsored by: Shalva
Moderator: Shani Strick
 
Early interventions: Embracing the family
Liat Rahat, Social Work, Shalva, Israel
 
Role of professionals in family-based care: Panel discussion
Shani Strick, Social Work, Shalva, Israel
Tova Berkovits, Speech Therapist, Shalva, Israel
Chana Yamin-Sherki, Educational Director, Shalva, Israel
Chaya Hendel, Occupational Therapy, Shalva, Israel
 
 
Session 4.3 - Autism and Asperger
Chairs: Leslie Rubin and Cory Shulman
 
Introduction to autism in Israel
Cory Shulman, Hebrew University, Israel
 
Life span
Leslie Rubin, Morehouse School of Medicine, USA
 
Floor time I
Esther Hess, Center for the Developing Mind, USA
 
Think Asperger
Raun Melmed, Melmed Center, USA
 
 
Session 4.4 - Prematurity and stress
Chairs: Tim Oberlander and Shaul Dollberg
 
The early origins of stress regulation in childhood 
Tim Oberlander, University of British Columbia, Canada
 
Impact of procedural stress
Ruth Grunau, Child and Family Research Institute, Canada
 
Physiological rhythms
Jeryes Jammalieh, Nazareth Academic Institute, Israel
 
Life course
Douglas Vanderbilt, University of Southern California, USA
 
 
Session 4.5 - Impact of cancer
Chairs: Ernest Katz 
 
Telling the child
Haya Raz, Israel
 
Clowning
Benjamin Heilbrunn, Children’s Hospital Los Angeles, USA
 
Quality of life
Ernest Katz, Children’s Hospital Los Angeles, USA
 
Bibliotherapy
Nicole Schneider, George Fox University, USA
 
 
16:00 – 16:15 Coffee break
 
 
16:15 – 18:15 Parallel sessions
 
 
Session 5.1 - Positive youth development
Sponsored by: Hong Kong Polytechnic University
Chairs: Patricia MacTaggart and Donald Greydanus
 
Concepts of health care in adolescents in the 21st century
Patricia MacTaggart, GW Health Policy Department, USA
 
Money literacy
Tak Yan Lee, City University of Hong Kong, Hong Kong, PRC
 
Love
Ronalda Hoffman, The Children’s Hospital at Westmead, Australia
 
Confucian virtues
Lu Yu, Hong Kong Polytechnic University, Hong Kong, PRC
 
Caring dispositions
Cecilia Ma, Hong Kong Polytechnic University, Hong Kong, PRC
 
 
Session 5.2 - Roundtable: Educating future generations
Chairs: Boaz Porter
 
Comprehensive care
Boaz Porter, Ben Gurion University, Israel
 
Adam Urefuah (Teaching the human side of medicine)
Dorith Shaham, Hadassah - Hebrew University Medical Center, Israel
 
Educating our children
Steven Czinn, University of Maryland School of Medicine, USA
 
Healthcare management
Nitza Davidovitch, Ariel University Center, Israel
 
Mentoring
Ellis Avner, Medical College of Wisconsin, USA
 
Leadership course
Daniel Shek, The Hong Kong Polytechnic University, Hong Kong, PRC
 
 
Session 5.3 - Neurobehavioral disorders
Chairs: Itai Berger and Yehuda Shapira
 
Early detection of ADHD
Mina Gurevitz, Macabi Health Services, Israel
 
Medical treatment of ADHD 
Gregory Smookler, Children’s Hospital of Los Angeles, USA
 
ADHD and neurologic stimulation 
Omer Hirsch, National Institute for Brain and Rehabilitation Sciences, Israel
 
Functional disconnection
Peter Scire, CERAN, USA
 
Epidemiological trends in the use of methylphenidate among children in Israel
Lutfi Jaber, The Bridge to Peace, Community Pediatric Center, Israel
 
 
Session 5.4 – Human development 
Chairs: Elliot Berry and Raed Mualem
 
The role of the sociotype in human development and health over the lifespan
Elliot Berry, Hebrew University of Jerusalem, Israel
 
Intelligence and empathy
Raed Mualem, Nazareth Academic Institute, Israel
 
Changing the behavior of parents of children who are bottle-feeding
Efrat Danino-Segal, Henrietta Szold/Hadassah-Hebrew University School of Nursing, Israel
 
A screening for genetic diseases or syndromes in people with intellectual disability in Israel
Vardiella Meiner, Hadassah - Hebrew University Medical Center, Israel
 
 
 
 
Session 5.5 – Rehabilitation
Chairs: Gerry Leisman and Amichai Brezner
 
Whole body rotations in the pitch and yaw planes in children with cerebral palsy and truncal hypotonia
Robert Melillo, FR Carrick Institute for Clinical Ergonomics, USA
 
Cognitive neuroscience
Gerry Leisman, National Institute for Brain and Rehabilitation Sciences, Israel
 
Rehab knowledge center
Orit Benyamin, Ort Braude College, Israel
 
Partnership with parents
Maya Goldman, David Yellin Academic College of Education, Israel
 
Novel aspects of neuromuscular disorders
Yoram Nevo, Hadassah - Hebrew University Medical Center, Israel
 
 
19:00 Gala dinner
 
Greetings 
Musical performance by special children and youth from Shalva, the Association for Mentally and Physically Challenged Children in Israel
Dinner
 
 
 
Tuesday, December 4, 2012
 
 
08:30 - 09:00 Registration and coffee
 
 
09:00 – 10:30 Plenum session
 
Whose life is it anyway? Coping with chronic disease and disability
Chairs: Richard Steele 
 
From child welfare to children’s well being: The child indicators perspective
Asher Ben-Arieh, Haruv Institute, Hebrew University, Jerusalem, Israel
 
Sexuality for those with intellectual limitations
Mijal Luria, Hadassah - Hebrew University Medical Center, Israel
 
The rightful life: Down's syndrome as a paradigm
Ariel Tenenbaum, Hadassah - Hebrew University Medical Center, Israel
 
Current and future programs for the emerging population of children with special healthcare needs in the United States
Edwin Simpser, St Mary's Healthcare System for Children, USA
 
 
10:30 – 11:00 Coffee break
 
 
11:00 – 12:30 Parallel sessions
 
 
Session 7.1 – Management of chronic conditions in pediatrics
Chairs: Raz Somech 
 
Bronchopulmonary dysplasia: Chronic lung disease and more! 
Benjamin Bar-Oz, Hadassah - Hebrew University Medical Center, Israel
 
Novel aspects of asthma in childhood 
Malena Cohen-Cymberknoh, Hadassah - Hebrew University Medical Center, Israel
 
Wheezing infants: Outcome from childhood to adulthood
David Shoseyov, Hadassah - Hebrew University Medical Center, Israel
 
Management of encopresis
Hava Gadassi, Hadassah - Hebrew University Medical Center, Israel
 
 
Session 7.2 - Rehabilitative support for children with chronic disease
Chairs: Maurit Beeri and Goldie Marans 
 
Childhood feeding disorders 
Pnina Hertz, Hadassah - Hebrew University Medical Center, Israel
 
Nutritional support of children with special dietary requirements
Hila Elyashar-Earon, Hadassah - Hebrew University Medical Center, Israel
 
Effectiveness of a cognitive-functional intervention for preschool children with attention deficit hyperactivity disorder: A controlled pilot study 
Adina Maeir, School of Occupational Therapy, Hebrew University, Israel
 
Infant feeding and long term health, including obesity, diabetes and cardiovascular disease
Lawrence Noble, Mount Sinai School of Medicine, USA
 
 
Session 7.3 - Special needs children
Sponsored by: Beit Issie Shapiro
Chair: Shimshon Neikrug
 
The HOPE model for enhancing wellness in pediatric chronic illness 
Ernest Katz, University of Southern California, USA
 
Access to health care
Rebecca Winitzer, University of Chicago, USA
 
An innovative program to coordinate interdisciplinary and interagency services for children with special healthcare needs
Mark Wolraich, University of Oklahoma Health Sciences Center, USA
 
Family quality of life
Nehama Baum, MukiBaum Treatment Centres, Canada
 
 
Session 7.4 - Special children and families
Chair: Leslie Rubin
 
See the whole picture
Booki Kimchi, Kesher – Connecting Special Families, Israel
 
Grandparents project
Leslie Rubin, Morehouse School of Medicine, USA
 
Dream doctors
Yaron Goshen, Ha’Emek Medical Center, Israel
 
Problem solving skills
Keren Geffen, Ariel University Center of Samaria, Israel
 
Role of psychologist
Edna Katzenelson, Tel-Aviv University, Israel
 
 
Session 7.5 - Pain management
Chairs: Tim Oberlander and Yaffa Zisk-Rony
 
Complex chronic pain
Lonnie Zeltzer, David Geffen School of Medicine at UCLA, USA
 
Virtual reality
Ofri Peled, University of Haifa, Israel
 
Pain and intellectual disability
Aya Roth, Israel Elwyn, Israel
 
Cervical epidural steroid
Zvi Herschman, Center for Pain Management, USA
 
Children's pain and parents on the front line: Attitudinal barriers and cultural aspects of parental pain management
Jodi Lev, Hadassah - Hebrew University Medical Center, Israel
 
 
Session 7.6 – Aspects of autism
Chair: Ditza Zachor and Sara Sadovnik
 
A description of a community outreach program for children with autism and their families
Nehama Baum, MukiBaum Treatment Centres, Canada
 
D.I.R./Floor Time: A developmental/relational approach towards the treatment of autism and sensory processing disorder in children and adolescents
Esther B Hess, Center for the Developing Mind, USA
 
Autism spectrum disorder: Birth, familial and child’s risk factors
Ditza Antebi Zachor, Assaf Harofeh Medical Center and ALUT, Israel
 
Specific phenotypes in autism spectrum disorders are more prevalent in affected females
Esther Ben Itzchak, Ariel University Center of Samaria, Israel
 
Familial factors and child’s symptomatology affecting the age of diagnosis of autism spectrum disorder
Ram A Mishaal, Assaf Harofeh Medical Center, Tel Aviv University, Israel 
 
 
12:30 – 13:30 Lunch break
 
 
13:30 -14:30 Plenum session
 
Violence and aberrant behavior among children and adolescents
Chairs: Revital Levi-Hevroni and Eli Eisenstein
 
Bullying related morbidity: Rediscovering the syndrome of maltreatment
Jorge Srabstein, Children’s National Medical Center, USA
 
Decision making in case of child maltreatment and interplay between hospital and community based protective services
Rami Benbenisti, Bar Ilan University, Israel
 
Alcohol and drug abuse among Israeli adolescents
Yehuda Neumark, Hebrew University of Jerusalem, Israel
 
 
14:30 – 16:00 Parallel sessions
 
 
Session 9.1 – Complex medical conditions
Chairs: Yechiel Schlesinger and Avi Schecter
 
Disorders of sexual differentiation: Etiology and treatment
David Zangen, Hadassah - Hebrew University Medical Center, Israel
 
Cancer survivors: Beware of the long term complications
Michael Weintraub, Hadassah - Hebrew University Medical Center, Israel
 
Chronic liver disease: Complications and implications
Eyal Shteyer, Hadassah - Hebrew University Medical Center, Israel
 
Non-surgical treatment of congenital heart diseases
Sagui Gavri, Hadassah - Hebrew University Medical Center, Israel
 
 
Session 9.2 - Patient focused care
Sponsor: Henrietta Szold/Hadassah-Hebrew University School of Nursing
Chairs: Beverly Goldsmith and Chaya Greenberger
 
Evidence-based nursing
Ilana Chertok, West Virginia University, USA
 
Breastfeeding duration and maternal sleep expectations: Comparison of full and partial rooming-in post-partum units
Elissa Sherby, Henrietta Szold/Hadassah – Hebrew University School of Nursing, Israel
 
The nurse as a case manager in chronic disease: CF as a model
Shoshi Armoni, Hadassah - Hebrew University Medical Center, Israel
 
Models of multidisciplinary care: The Hadassah Center for Children with Chronic Diseases
Yael Kastiel, Hadassah - Hebrew University Medical Center, Israel
 
 
Session 9.3 - Communication and interaction
Sponsored by: Beit Issie Shapiro
Chair: Robert Jacobs
 
Sensory sensitivity
Sharon Cermak, University of Southern California, USA
 
Sensory processing
Beth Jacobs, John Tracy Clinic, USA
 
Sensory adapted environment
Michele Shapiro, Beit Issie Shapiro, Israel
 
Snoezelen case stories
Meir Lotan, Ariel University Center of Samaria, Israel
 
 
Session 9.4 – Developmental delay revisited
Sponsor: Department of Psychology, Hadassah – Hebrew University Medical School
Chairs: Yonata Levy 
 
Developmental delay revisited
Yonata Levy, Hebrew University, Israel
 
Prenatal origin of developmental delay
Asher Ornoy, Israel Ministry of Health and Hebrew University, Israel
 
Early diagnosis of autism: An update
Ditza Zachor, Autism Center, Assaf Harofeh Medical Center, Israel
 
Early signs of ADHD in the preschooler
Itai Berger, Hadassah - Hebrew University Medical Center, Israel
 
 
Session 9.5 - Adults and intellectual disability
Chair: Mohammed Morad and Ariel Tenenbaum
 
Older people with Intellectual disability
Hefziba Lifshitz, Bar-Ilan University, Israel
 
MOST program
Deborah Fisher, Jewish Foundation for Group Homes, USA
 
Israel hospitalizations and Down syndrome
Ariel Tenenbaum, Hadassah - Hebrew University Medical Center, Israel
 
Health related characteristics of adults with learning disabilities 
Kineret Sharfi, Haifa University, Israel
 
Strategic plan to enable adults with cognitive and motoric disabilities to achieve a social and educational place within society
Rivka Kessing, ALEH – Jerusalem, Israel
 
 
Session 9.6 – Workshop: Bullying
Chair: Jorge Srabstein
 
Detection, prevention and treatment of bullying related morbidity
Jorge Srabstein, Children’s National Medical Center, USA
 
Bullying related suicide
Anat Brunstein-Klomek, Interdisciplinary Center Herzliya, Israel
 
 
16:00 – 16:15 Coffee break
 
 
16:15 – 18:15 Parallel sessions
 
 
Session10.1 - Roundtable: Ethical challenges
Moderator: Isaiah Wexler
 
Children and end-of life issues
Sandra Friedman, University of Colorado School of Medicine, USA
 
Perspective of a parent
Doron Almog, ALEH Negev, Israel
 
Not-to-resuscitate
Nathali Dehtiar and Shlomit Grayevsky, ALEH-Jerusalem, Israel
 
Assisting families in dealing with death
Ben Corn, Tel Aviv Sourasky Medical Center, Israel
 
Role of healthcare personnel dealing with the dying child
Isaiah Wexler, Hadassah - Hebrew University Medical Center, Israel
 
 
Session 10.2 - Roundtable: Adolescence 
Moderator: David Bennett and Jessica Kahn
 
Youth sexual health: What is our role as health care providers?
Mijal Luria, Hadassah - Hebrew University Medical Center, Israel
 
Compensated dating in Hong Kong: Prevalence, psychosocial correlates, and its relationships with other risk behavior
Tak Yan Lee, City University of Hong Kong, Hong Kong, PRC
 
Prevalence and correlates of pornography consumption among early adolescents in Hong Kong
Cecilia Ma, The Hong Kong Polytechnic University, Hong Kong, PRC
 
A longitudinal study of internet addiction amongst adolescents in Hong Kong
Lu Yu, Hong Kong Polytechnic University, Hong Kong, PRC
 
 
Session 10.3 - Early childhood and school
Chairs: Olivia Fiertag and Noa Shemesh
 
Voice of children
Anne Crowley, Cardiff University, Wales
 
Safety and home environment
Liat Korn, Ariel University Center, Israel
 
Surveillance study of severe self harm in children under 15 years requiring admission to paediatric intensive care/specialised liver units
Olivia Fiertag, Barnet Enfield and Haringey Mental Health Trust and Imperial College, UK
 
European study on internet
Artemis Tsitsika, University of Athens, Greece
 
Prevalence of developmental delay in ultra Orthodox preschool boys: Possible interventions
Anat Golos, School of Occupational Therapy, Hebrew University, Israel
 
 
Session 10.4 - Abuse and maltreatment
Chair: Bruce Friedman and Teodor Postolache
 
Late effects
Kenisha Ray, California State University, USA
 
Foster children
Bruce Friedman, California State University, USA
 
Reporting
Merav Ben-Natan, Hillel Yaffe Medical Center, Israel
 
Natural environment and behavioral dysregulation
Teodor Postolache, University of Maryland School of Medicine, USA
 
Self-harm and suicidal behaviors in Hong Kong adolescents over time: Prevalence and correlates
Daniel TL Shek, The Hong Kong Polytechnic University, Hong Kong, PRC
 
Secrets I never (even) told myself: On unthinkable thoughts of parents of sick children
Hilit Erel-Brodsky, Faculty of Social Sciences, Bar Ilan University, Israel
 
 
Session 10.5 – Autism research
Sponsored by: National Institute for Brain and Rehabilitation Sciences, Israel 
Chair: Gerry Leisman
 
Maternal stress
Robert Melillo, CERAN, USA
 
Connectivity
Rafael Rodriguez-Rojas, International Center for Neurological Restoration, Cuba
 
EEG and brain connectivity
Calixto Machado, CERAN, USA
 
Brain connectivity
Mario Estevez, Institute of Neurology and Neurosurgery, Cuba
 
Dis-connectivity
Gerry Leisman, National Institute for Brain and Rehabilitation Sciences, Israel
 
 
Session 10.6 - Development and disability
Chair: Sarah Sadovnik
 
Mental health service
Amanda Sinai, Ministry of Social Affairs and Social Services, Israel
 
EyeClick
Yael Press, Ministry of Social Affairs and Social Services, Israel
 
Rett syndrome
Meir Lotan, National Center for Evaluation Assessment and Supervision for Individuals with RS, Israel
 
Helping hands
Adina Joseph, Ministry of Health, Israel
 
 
19:30 Night tour or specially assigned meetings
 
Peres Peace Center Forum
In memory of the late Ido Yatsiv, MD, former director of the Hadassah Pediatric Intensive Care Unit
NICHD International Advisory Board
 
 
 
 
Advances and new approaches to pediatric chronic disease and disability
Chairs: Michael Wilschanski and Raphael Cayam
 
Infections in children with chronic illness: Viral and bacterial pathogens in pediatric long term care facilities
Philip Toltzis, Hadassah - Hebrew University Medical Center, Israel
 
Inflammatory bowel disease: A model of chronic disease
Shimon Reif, Hadassah - Hebrew University Medical Center, Israel
 
Polycystic kidney disease: A model for treating genetic-based chronic diseases
Ellis D Avner, Children's Hospital of Wisconsin, USA
 
Prospects for a helicobacter pylori vaccine to treat peptic ulcer disease
Steven J Czinn, University of Maryland School of Medicine, USA
 
 
10:30 – 11:00 Coffee break
 
 
11:00 – 12:30 Parallel sessions
 
 
Session 12.1 - Medicine without borders
Chair: Ellis Avner and Peres Peace Center
 
Inclusion
Lillrut Sarras, The Swedish Organization for Individual Relief, Sweden
 
Myasthenia
Muhannad Daana, Hadassah - Hebrew University Medical Center, Israel
 
Building a center for cystic fibrosis in Gaza
Mahmud Shimally, Gaza
 
Global care for adolescents to insure our future
Hatim A Omar, University of Kentucky, USA
 
 
Session 12.2 - Environmental issues
Chairs: Leslie Rubin and Yona Amitai
 
Pollution in a community
Leslie Rubin, Morehouse School of Medicine, USA
 
Oral health disparities
Michael Rudolph, Developmental Pediatrics Specialists, USA
 
Pesticide
Yona Amitai, Bar Ilan University, Israel
 
Booster seat usage among Israeli children
Sarit Shimony-Kanat, Henrietta Szold/Hadassah – Hebrew University School of Nursing, Israel
 
 
 
 
 
Session 12.3 - Intellectual disability and interventions
Chair: Jean Judes
 
Dental aspects
Ilan Feldberg, Ministry of Social Affairs, Israel
 
Mental health
Mike Stawski, Schneider Children’s Medical Center, Israel
 
Role of the therapist
Itzhak Hirshberg, Beit Issie Shapiro, Israel
 
Developmental psychology
Stephen Glicksman, Women’s League Community Residences, USA 
 
Endocrine aspects
Ilana Koren, Technion, Israel
 
 
Session 12.4 - Psychosocial aspects of sports in adolescence
Chair: Dilip Patel
 
Concepts for pediatricians
Donald Greydanus, Western Michigan University School of Medicine, USA
 
Psychosocial aspects
Dilip Patel, Western Michigan University School of Medicine, USA
 
Vitamin D deficiency
Vladyslav Povoroznyuk, Ukrainian Scientific – Medical Centre for the Problems of Osteoporosis, Ukraine
 
Exercise in cystic fibrosis: Capacity and ability
Iris Eisenstadt, Hadassah - Hebrew University Medical Center, Israel
 
 
12:30 – 13:30 Lunch break
 
 
13:30 – 14:30 Plenum session
 
Improving the quality of life for children with chronic disease and disabilities
Chairs: Shimon Reif 
 
Dealing with healthcare disparities
I Leslie Rubin, Morehouse School of Medicine and Emory University, USA
 
Dealing with learning disabilities among children with chronic disease
Itai Berger, Hadassah - Hebrew University Medical Center, Israel
 
Comprehensive rehabilitative services: Interphase between community and specialized rehabilitative centers
Maurit Beeri, ALYN, Jerusalem, Israel
 
 
 
 
 
 
14:30 -16:00 Parallel sessions
 
 
Session 14.1 – Health care transition
Chairs: Hannah Blau and Joe Reisman
 
Examining assumptions underlying policy-related initiatives on transition to adulthood for youth with disabilities
Yani Hamdani, University of Toronto, Canada
 
Cystic fibrosis 
Shirli Werner, Hebrew University of Jerusalem, Israel
 
Chronic kidney disease
David Nicholas, University of Calgary, Canada
 
Cystic fibrosis and pregnancy
Tali Cohen, Hadassah - Hebrew University Medical Center, Israel
 
 
Session 14.2 - Parents and their children
Chair: Fortu Benarroch
 
The traumatic experience of giving birth prematurely to a very-low-weight baby
Nehami Baum, Bar Ilan University, Israel
 
Reactions to the diagnosis of children with developmental delay: Parental differences and marital satisfaction
Yael Barak-Levy, Ben Gurion University of the Negev, Israel
 
Children of new immigrants with special needs: Barriers to diagnosis and treatment with suggestions for better services
Yoav Loeff, Myers-JDC-Brookdale Institute, Israel
 
Women with disabilities become mothers: How can we support their needs?
Carmit-Noa Shpigelman, University of Illinois at Chicago, USA
 
Personal growth and subjective happiness of mothers in the face of their child's disability: 
The non-categorical approach
Liora Findler, Bar Ilan University, Israel
 
 
Session 14.3 - Public health aspects 
Chair: Ilana Chertok
 
Post fertile motherhood
Wendy Chen, Chaim Sheba Medical Center, Israel
 
Scoliosis
Debbie Feldman, Université de Montréal, Canada
 
Pediatric ER
Alan Nager, Children’s Hospital Los Angeles, USA
 
Inclusion
Yosefa Isenberg, Achva College of Education, Israel
 
Breast-feeding
Ilana Chertok, West Virginia University, USA
 
 
Session 14.4 – Workshop on teen sexuality
Moderator: Donald Greydanus and Hatim A Omar
 
Introduction to adolescent sexuality
Care of the LGBT teen
Contraception for chronically ill adolescent and young adult
Q and A
 
 
16:00 – 16:15 Coffee break
 
 
16:15 -17:30 Closing plenary
 
Chair: Joav Merrick
 
Providing optimal care to people with intellectual and developmental disabilities
Joav Merrick, Division for Intellectual and Developmental Disabilities
Israel and David Ervin, The Resource Exchange, USA
 
The medical home: Changing paradigm for healthcare delivery to the most needy
Isaiah Wexler, Hadassah - Hebrew University Medical Center, Israel
 
 
Safe journey home to all
 
 
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